For Patients

Advanced Therapies, or “living drugs”, are reality already.
People are being cured of diseases that were previously considered incurable. But the implementation of Advanced Therapies into clinical practice and their wider accessibility as treatment options for patients is still a demanding task. Only few therapies have reached the market and only a small number of patients could benefit from them.
BeCAT faces this challenge.
With patient-centered clinical research in compliance with the highest quality and ethical standards, BeCAT paves the way to bring these novel therapy concepts into the clinical practice.

 

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Patient-centered research

Patient-centered research is based on the identification of the best intervention for every individual patient.
However, though patient-centered research focuses on the patient, patients are not being treated here at BeCAT. Treatment is provided at clinics and centres specialised in treating the different diseases.
Hereafter you find links to the external website of numerous patient oranganizations and patient advocacy groups, especially for patients with chronic conditions, that provide information and support to patients and/or their families. Please contact these organizations/groups for answers to your questions. An added benefit of these institutions is their endeavour to foster the partnership between patients and researchers to conduct research that addresses patient´s needs. So that by contacting them, patients help other patients as well as researchers to set research priorities.
At the bottom of this page you also find links to external websites with information about Advanced Therapies in general and ATMP-based clinical trials.

Patient organisations and advocacy groups

The following links provide access to external websites of patient organisations and patient advocacy groups, sorted by the type of disease or the organ system involved. The listing mainly includes German-speaking institutions.

Oncology & Hematology

Germany

  • Deutsche Krebshilfe
    "Help. Research. Inform." Projects to improve prevention, early detection, diagnosis, therapy, medical aftercare and psychosocial care, including cancer self-help.
  • Krebsratgeber
    Information on patient organisations for cancer patients and relatives.

Switzerland

  • Krebsliga
    The Krebsliga advocates a world in which fewer people contract cancer, fewer people suffer and die from the consequences of cancer, more people are being cured of cancer, and people affected and their families receive care and help at all stages of the disease and death.

Cardiovascular Diseases

Germany

  • Deutsche Herzstiftung
    One of the main tasks of the Deutsche Herzstiftung is to inform patients independently about heart diseases: Which therapies make sense and which treatment methods can no longer be recommended today? The Deutsche Herzstiftung is also known for its large, wide-ranging information campaigns and important research projects funded by the Heart Foundation in the past in the field of cardiovascular diseases.

Switzerland

  • Schweizerische Herzstiftung
    Non-profit organization active in the field of cardiovascular diseases that promotes research as well as education and prevention.

Central Nervous System Diseases

Germany

Switzerland

Musculosceletal Diseases

Germany

Switzerland

  • Schweizerische Muskelgesellschaft muskelkrank & lebensstark
    Advice and support for patients and their relatives, contact and self-help groups, leisure and camp activities, services provided by the muscle centres, information and training opportunities for patients, institutions and specialists, information, press and public relations work.

Endocrine, Metabolic & Genetic Disorders

Germany

Switzerland

Ophthalmology

Germany

  • Bundesverband AUGE e.V.
    The Bundesverband AUGE e.V. supports eye patients and their relatives in coping with their problems and answers questions and concerns about chronic eye diseases.

Switzerland

Immunology & Inflammation

Germany     

  • dsai / Deutsche Selbsthilfe Angeborene Immundefekte e.V.
    The dsai is committed to early diagnosis, appropriate therapy, nationwide care, public information and to those affected and their relatives.
  • Deutsche Rheuma-Liga Bundesverband e.V.
    Offers of help and self-help for those affected, the education of the public and the representation of the interests of rheumatics patients towards politics, health care and the public as well as the promotion of research are priority tasks of the organisation.

Switzerland

  • Rheumaliga Schweiz
    The Rheumaliga Schweiz is a non-profit organization dedicated to helping over two million people with rheumatism throughout Switzerland. It supports healthy people in maintaining their health through prevention and information. People with impaired health receive help through medical, therapeutic, social and preventive measures.

Dermatology

Germany

Switzerland

Infectious Diseases

Gastroenterology

Germany

  • Deutsche Gesellschaft für Gastroenterologie, Verdauungs- und Stoffwechselkrankheiten
    Overview on non-profit associations, institutions and self-help associations according to specific disease.
  • Gastro-Liga e.V.
    The Gastro-Liga - Deutsche Gesellschaft zur Bekämpfung der Krankheiten von Magen, Darm und Leber sowie von Störungen des Stoffwechsels und der Ernährung e.V. - fights against diseases of the digestive organs. Recognized physicians support the work of the Gastro-Liga and inform about prevention, recognition and treatment.

Switzerland

  • Magendarmliga Schweiz
    The Magendarmliga Schweiz aims at developing and disseminating neutral, up-to-date and reliable information on diseases of the gastrointestinal tract.

Genitourinary Disorders

Germany

  • Urologenportal
    The PatientenAkademie der Deutschen Gesellschaft für Urologie e.V. has compiled a link list with self-help groups and patient organisations. Patients receive current information as well as contact addresses.

Switzerland

Respiratory Diseases

Germany

Switzerland

  • Lungenliga Schweiz
    The Lungenliga advises and cares for people with lung and respiratory diseases, so that they can live as symptom-free and independent as possible and achieve a higher quality of life.

Information about Advanced Therapies and ATMP-based clinical trials

The following links allow you to have access to external websites with more information about Advanced Therapies and information on ATMP-based clinical trials.
All links are being provided as a convenience and for informational purposes only.

Advanced Therapies and Regenerative Medicine

EU Clinical Trial Regulation

Clinical Trial Registries

The following links allow you to search for information on ongoing and completed clinical trials.